Finn's Story

In early december 2022 Finn had been back and forth to our local hospital, gp, out of hours doctors and everytime we had been sent home.

On our last trip at our local hospital which was made by ambulance as Finn had coughed up a little bits of blood on dads t shirt.

At the A&E he was sent to pdu at the Luton & Dunstable Hospital. I refused to be sent home and demanded they do an ultrasound to check as you could feel a lump in his belly and slightly in his back to his right side.

Finally this doctor listened to and agreed, she could also feel the lump as mum kept saying it is not constipation it is sometjing else.

The next day at 3pm Finn had an ultrasound amd by 5pm that day two senior nurses came to the room and asked me to go with them, I then had to endure something no parent should have to go through alone as Fin’s dad was home minding his older brother and sister.

Once in the room I was shown his ultra sound and we were also on the phone with his dad and we were told Finn had a very large tumour in his tummy its was the size of a small soft ball and we would need to be transferred to Addenbrookes in Cambridge.

Over the next few days and after various tests scans, blood tests etc we were told at 19 months old Finn had High Risk Neuroblastoma Cancer and he was eligible for a trial.

Of course we agreed to do the trial, any parent would try and save theur child from this awful disease. The trial consisted of four stages including high dose chemo and a stem cell replacement then radiotheraphy and then anti gd2 or immunotheraphy.

In to Finn was in hospital for 11 and a half weeks as he ended up with various infections and breathing issues.

We finally got home in early july 2023 and were home for just two weeks before he started radiotheraphy for three weeks and we had to stay on site during his three weeks of radiotheraphy.

At this time our two other children had to stay with relatives as they were not allowed to be near him during this period.

Finn has also lost his high pitch hearing due to treatment and is non verbal which makes it so difficult to communicate at this time.

We are in discussion on what the next move is as he refuses to wear hearing aids. He also has a blood clot on his lung from his treatment.

Finn does have his, mum, dad and his brother Luke and big Sister Chloe who love him so much and we have our own way of communicating with him.
Finn can also give you the biggest hug and kiss.

When I read what the wonderful Ben Saunders Foundation offers I contacted them and we cannot wait to Celebrate Finns 3rd birthday in the Cotswolds.