Frank's Story

Aged 11 Frank had a limp from March/April 2019, it was barely noticeable and somebody had fallen on him in rugby so we thought little of it. It wasn’t giving him much pain (which I now know is a warning sign).

None of the classic signs were there other than the limp. No weight loss, night sweats, weakness, fatigue etc. Late April we went on holiday and he noticed he couldn’t keep up with friends. We went to the GP in May, it was written off as a hamstring strain.

I took him back to the GP in the June as it was getting worse. Frank acted and performed and his big audition of the year (panto) was in Sept which was 3 months away. At this point we thought at worst it might be crutches and a leg support for a couple of weeks. We saw a different GP that time who I think suspected immediately. He sent us straight for an X-ray, called me back in that afternoon (‘how very efficient!’ I thought) and the bombshell was dropped.

An MRI first thing the following morning followed by a biopsy confirmed a rare bone cancer called osteosarcoma. He had a tumour in his right femur measuring about 18cm at that point I think. After breaking the news to your husband, sitting your kids down at the kitchen table and telling them one of them has cancer really is up there on my memorable experience. We had to tell them Frank’s diagnosis was terminal.

Frank had about 12 weeks of intensive high toxicity chemo and was then re scanned, the tumour had grown; spread to the other femur and there was a question mark over very small dots in his lungs.

He switched to an alternative chemo. He had limb salvage surgery to leg 1 in Dec 2019 which is essentially replacing the leg bone from hip to shin with a metal implant.

He finished his chemo in March 2020 and rang the ‘end of treatment bell’ at Birmingham Children’s Hospital. We all celebrated, friends treated him to a surprise limo ride home, it was a time of tentative positivity. He was as weak as a kitten and the side effects of his chemotherapies were horrendous.

Frank had his limb salvage surgery to leg 2 in May 2020. By this time Covid restrictions had set in and both parents could not be present. That was tough.

We always knew there was a fair chance the cancer could come back but were feeling as confident as it is possible to be, given the statistics.

After surgery to leg 2 Frank regained strength, and started back at school that September (2020). Frank always dealt with the situation magnificently. No ‘why me’ - he just got on with it at every stage, never moaned, and as parents he gave us the easiest ride a child could give. We are so proud of the person he was and his positive practical attitude even during very very difficult times. This is where the #BeMoreFrank attitude came from.

November 2020’s routine chest CT showed the lung dots had turned into small tumours which were removed surgically in December. There were multiple complications and he ended up with 4 surgeries, 3 of which were emergencies, rather than the 1 which had been planned but at least the tumours were out. We ended up being in hospital for much of December, it was touch and go whether he would be out for Christmas but they gave him a week’s reprieve in the end with a chest drain, from his back, between his ribs (very painful for him). We spent our second consecutive New Years Eve in hospital.

His follow up CT in early Feb 2021 showed new, multiple tumours had developed. They were inoperable and ultimately took his life.

At that point he’d done 20 months of cancer, 9 surgeries, and I think at last count we’d done about 115 nights in 4 hospitals.

He’d had enough. After being diagnosed as terminal he had a few great months with gradual and consistent deterioration. He flew in helicopters, fired guns, had silly string fights, created a caravan den with his bestie, saw friends, drove in supercars, had a home cinema set up in the garden: all fantastic but heartbreaking.

What followed was a few very very bad weeks and he died aged 13 at home - which he was adamant he wanted - on 4th June 2021, with his family. He also has a big sister Josie with children of her own. She who was able to spend lots of time with him toward the end which was special for him. His funeral was held on the summer solstice, 2 years to the day from diagnosis. His only funeral request was that the dog attend, which she did, wearing an LFC snood. He was a big LFC fan!

Frank was simply amazing, cracking jokes until he was no longer able to speak or communicate. His friends and family try to take a little of this forward in his honour and we all try to seize the day, be braver. Be kinder. Be More Frank.