Fynley's Story

During lockdown 2020 our son Fynley then age 12 had been suffering with painful legs, this was affecting his ability to walk and join in with day to day activities.

It took us 3 visits to our GP surgery before being referred to A&E for an X-ray to look into his leg pains further, upon being seen at A&E the nurse wanted to take bloods straight away as was concerned about his paleness, both sets of bloods came back not right and we were admitted to the children’s ward for the night as they wanted to send bloods off for further testing.

The following day we were pulled into a room and told that our boy had cancer.

Fynley was diagnosed with Acute Lymphoblastic Leukaemia in the August of 2020 amidst the pandemic, we were transferred from our local hospital to Southampton General Hospital for treatment to begin straight away, our world shattered into a million pieces and we felt like we’d been hit by a steam train trying to process all of the treatment that laid ahead of him.

For the next 2.5 years, learning all the new medical terminology was a minefield!

Fynley is now doing really well and makes the best of his good days, he’s currently in the long term maintenance phase of treatment which consists of taking oral chemotherapy everyday, IV chemotherapy once a month alongside a 5 day steroid pulse and a lumbar puncture once every 12 weeks.

End of treatment is November this year so ringing the bell is in sight.

We can’t thank the Ben Saunders Foundation enough for providing us with this well needed break away 🧡